The Sofie's Journey Story
From One Family’s Journey to National Impact
This event was born from the Levy family’s epilepsy journey. When Sofie had her first seizure at age 5, they discovered the challenges of finding specialized epilepsy care. After years of treatment and eventually brain surgery, Sofie achieved seizure freedom – now 16 years seizure-free.
The Levys created Epilepsy Awareness Day at Disneyland to ensure no family faces epilepsy alone. Their vision: connect every person with epilepsy to the best possible care and strongest community support.
About Epilepsy Awareness Day
Transforming Epilepsy Care Through Community, Education & Disney Magic
Bringing Hope to the East Coast Epilepsy Community
Epilepsy Awareness Day at Walt Disney World represents the expansion of America’s most successful epilepsy awareness conference. For 12 years, our California event has connected over 60,000 attendees with specialized epilepsy care, resulting in hundreds of seizure-free success stories.
Key Achievements:
- 5,000+ annual attendees in California
- 150+ families connected to epilepsy surgery annually
- 12+ documented surgical success stories per year
- Partnership with 50+ leading epilepsy centers nationwide
Bringing Proven Success to Florida
We, as Florida partners, have come together through our state-based organizations to bring this transformative experience to families and medical professionals throughout Florida. Building on the proven success of Epilepsy Awareness Day at Disneyland, we’re expanding this life-changing event to serve the epilepsy community across the Sunshine State.
